What is long COVID?

Long COVID is if you’ve had new or ongoing symptoms four weeks or more after you first had symptoms of coronavirus, and these symptoms can’t be explained by another illness.

Research suggests that long COVID affects one in 10 people who get coronavirus.

What does long COVID mean?

The term ‘long COVID’ has been used a lot on social media. There are two medical definitions.

  • Ongoing symptomatic COVID-19. This is if you have symptoms of coronavirus from four to 12 weeks

  • Post COVID-19 syndrome. This is when symptoms of coronavirus carry on after 12 weeks and can’t be explained by another diagnosis

Image by S&B Vonlanthen

What are the symptoms of long COVID?

There are a lot of symptoms of long COVID which can come and go or change over time.

Some of the main reported symptoms include:

  • fatigue (extreme tiredness)

  • fever

  • brain fog (difficulty concentrating and struggling to think clearly)

  • headaches

  • sore throat

  • cough

  • lost sense of taste and/or smell

  • chest pain or tightness

  • lung problems

  • gut problems

  • joint and/or muscle pain

  • breathlessness

  • palpitations (fast heartbeat)

  • kidney problems

  • skin rashes

  • sleep problems

  • symptoms of anxiety and depression


 

You may have a combination of these symptoms, varying in severity, that ease and then flare up. You may have a run of good days followed by feeling poorly again.

Who is most at risk?

Long COVID can affect anyone with coronavirus. But early data from King’s College London suggests it may be more likely to affect:

  • women

  • older people

  • people who have a greater number of different symptoms during the first week of being ill


 

What treatment is there for long COVID?

The National Institute for Health and Care Excellence (NICE), the Scottish Intercollegiate Guidelines Network (SIGN) and the Royal College of General Practitioners (RCGP) have published joint guidelines about the long-terms effects of coronavirus. It’s a ‘living’ guideline. This means they will update it when new scientific information becomes available.

If you think you have long COVID, make an appointment with your GP. They will ask you about your medical history and your symptoms. They’ll also ask you how your symptoms are affecting your life.

Your GP may refer you for further tests. This is to find out if your symptoms are likely to be because of long COVID, or if it could be a different condition that’s causing them. For example, you might have a blood test, chest X-ray or a test that assesses your ability to do certain activities.

The symptoms of long COVID are very wide-ranging. So your doctor will advise tests that are most relevant to your set of symptoms.

If your doctor is concerned about specific severe complications, they will refer you for relevant treatment. Otherwise they may refer you to what’s called a multi-disciplinary service if there’s one set up in your area. Here you’ll receive advice on how to manage your symptoms and support for your recovery.

How can I help myself if I have long COVID?

Pace yourself

Many people who are living with long COVID have said that it’s hard to accept that recovery may be slow and ongoing. However, they also said that realistic goals and pacing themselves helped them to progress. Try to lower your expectations of fast recovery and take it one day at a time.

Tell your loved ones

Talk to your friends and family about how you are feeling. Let them know that you may need their support and that some days may be harder than others. You may find that telling people helps you feel better and understood.

Cope with unpredictability

One of the hardest aspects of long COVID is that recovery isn’t in a straight line. It can be unpredictable. This can be tough if you’ve been feeling well and then have symptoms again.

Access practical help

Access reputable websites that offer support specifically for long COVID. We have compiled a list for you below.

  • Your COVID recovery from NHS England.
    This site offers you lots of advice and support about recovering. It covers advice about how to manage ongoing effects, support for friends and family, managing daily tasks and returning to work. There’s also an option to access a new personalised digital programme that’s designed to support recovery. A healthcare professional will need to refer you – you’ll need to ask your doctor or hospital if there’s a centre in your area.

  • How to manage post-viral fatigue after COVID-19 from The Royal College of Occupational Therapists.
    This site gives you advice about dealing with the fatigue you feel after having a virus. It sets the advice out in ‘steps’ so you can follow them according to how you’re feeling. They also have a good resource on ‘conserving energy’.

  • Managing post-viral fatigue after coronavirus from the ME Association.
    This leaflet explains what post-viral fatigue is and what post-viral fatigue syndrome is. It offers advice for managing it.

  • Post-COVID HUB by Asthma UK and British Lung Foundation.
    This hub of information is specifically for those who have been left with breathing difficulties from coronavirus. It offers lots of practical advice, including techniques for breath control.

  • Covid-19: the Road to Recovery from The Chartered Society of Physiotherapy.
    This page offers videos, tips and advice on what to expect when recovering. For example, there are strength exercises and an activity planner.

Image by Stefano Pollio